Meet the Heroes
"Truly wonderful, the mind of a child is." -Yoda
"And if you believe in gene expression you may find solace in this: She believed she could and so she did." - Unknown
We have superheroes in our lives that come in different shapes and sizes. Even those with Chromosome 8 differences share many similarities. They are hard working individuals that average 1,500 hours of therapy a year. They deserve to enjoy every opportunity that life has to offer. And these heroes are doing it with a smile despite the daily challenges that face them.
The majority of these children have developmental delays amongst other health complications in a wide range including disordered acquisition of cognitive and social competence and delays in reaching developmental milestones.
They are living with a label that is a mouthful that has no recognizable name and falls under the broader category of a rare genetic disorder or orphan disease. However, with our help, these heroes should never feel alone and labelled – they can learn from each other and teach the world…so that a chromosome 8 disorder transforms from an adjective to a meaningful and inspirational call to action. And that is why these heroes are special.
And let’s not forget that superheroes have a support system including tireless working Mothers, Fathers, Siblings, Relatives, Doctors, Therapists and more. We celebrate them all!