1st Scientific & Family Conference

Our 2019 1st Conference was a huge success! The conference convened around chromosome 8p disorders for researchers and clinicians and families of 8p heroes. The overarching goals of this conference were to begin building a strong community of researchers and families and determine research and treatment priorities.

Dates and Location - June 27th - 29th, 2019

Fox 5 NY News Coverage of Conference:

Family of girl with rare chromosomal disorder creates non-profit to help research condition

June 28, 2019

Thursday, June 27th

5:00 PM Check-In & Registration Opens

6:00 PM - 9:00 PM Welcome Dinner. Researchers are invited to attend all events.

Location: Roy and Diana Vagelos Education Center, 104 Haven Avenue, NY, NY

Columbia University Irving Medical Center

  • the area is called Washington Heights

  • For more details on the venue, click here.

Friday - Saturday, June 28th and 29th

8:00 AM Check-In & Registration Opens

9:00 AM - 5:00 PM Conference in Session

Location: Hammer Health Sciences Center, 701 W 168th St, New York, NY 10032

Columbia University Irving Medical Center

  • the area is called Washington Heights

  • Please note that for Sunday, June 30th we recommend families planning their own leisure activities. We will email registrants local tourist attractions.

  • Local Guide for NYC visitors 

Please click here for Registration.

Travel Stipend Application Deadline has passed and recipients have been notified by email.

Upon Completion of Registration, please also click the link for the required survey (will pop up after completion). It is important that we hear your voice and understand what you expect from the conference.

*** For those unsure or will attend via live streaming from all over the world, please also complete this survey.

*** For 8p families, we suggest you request to join our closed private group on Facebook for current updates and ask questions about the event in this link:

Agenda will be shared closer to the date of the conference.

Room Blocks are no longer available but we encourage asking for a discounted rate. We recommend staying in NYC.

  1. Hotel Beacon
    2130 Broadway at 75th Street
    New York, New York 10023
    -For reservations, call 212.787.1100 ext. 2, between 9:00 am and 6:00 pm EST Monday through Friday and mention the group name, “Project 8P” to receive the reduced rate. 

    Guests may also email, at with Project 8P in the subject line.

    -$265 per night +tax 

    -ADA rooms are available but limited (Only studio rooms available at $265 rate, suites are $315)

    -60 day cancellation policy
    -must book by April 29
    -complimentary coffee
    -breakfast coupons available for Viand Cafe
    -refrigerator in room
    -complimentary WiFi

  2. Homewood Suites by Hilton Edgewater, New Jersey
    10 The Promenade
    Edgewater, NJ 07012
    Use the link for reservations or call 1-800-774-1500 and mention the Project 8P 2019 Room Block at this hotel. OR Go to or the app and type in the group code PRO.
    -$199 per night +tax
    -ADA rooms are available but limited
    -complimentary breakfast
    -refrigerator in room
    -complimentary WiFi
    -48 hour cancellation policy
    -must book by June 13

    ** please note the hotel complimentary shuttle does not go to Manhattan. It can take up to 45min during rush hour to drive across the bridge. RUSH HOUR WILL EFFECT YOUR COMMUTE TO AND FROM COLUMBIA MEDICAL CENTER BOTH DAYS. Please plan on an extra hour or more each day to arrive on time for the conference.

NYC Transportation

Subway and Bus Trip Planner

NYC Wheelchair Accessible Information

Helpful Travel Links
• Access-A-Ride Transportation system for individuals with disabilities
• Wheelchair accessible Taxi Cabs

  • For Yellow Taxis/Cabs, call 311 and request 4 passenger wheelchair accessible cab if needed.

If you are staying at Hotel Beacon in NYC, there is no parking on site however there is a garage across the street.
Carousel Parking Corp- Champion Parking 
201 75th Street

If you are staying at Homewood Suites at Edgewater, there is free parking.

Columbia University Medical Center 
*Valet parking at Milstein Hospital (~$30)
Call 212-304-1037 for information 
*Self Parking at 115 Fort Washington Ave b/t 164th and 165th. (~$30). The garage is a 9min walk/0.4 mile. Call 212-305-4903 for information.

Sponsors we welcome you to request our media kit for you to get exposure at a rare disease conference and we thank you for supporting us.