1st Scientific & Family Conference
For the first time this summer, Project 8p will convene a conference on chromosome 8p disorders for researchers and families. This conference will include a scientific meeting for researchers and clinicians, as well as a family meet-up. The overarching goals of this conference will be to begin building a strong community of researchers and families and determine research and treatment priorities.
Dates and Location - June 27th - 29th, 2019
Begins on the afternoon of Thursday, June 27th at 12:45 PM, a welcome dinner on June 27th at 6 pm and full days on June 28th – 29th. Researchers are invited to attend all events.
Begins with a welcome dinner on June 27th at 6 pm and full days on June 28th – 29th by 5 pm.
Please note that for Sunday, June 30th we recommend families planning their own leisure activities. We will send out a list of “Fun things to do in NYC” with discount codes.
Local Guide for NYC visitors www.nycgo.com
Roy and Diana Vagelos Education Center, 104 Haven Avenue, NY, NY
Columbia University Irving Medical Center
the area is called Washington Heights
For more details on the venue, click here.
Please click here for Registration and Travel Stipend Application Details
Upon Completion of Registration, please also click the link for the required survey (will pop up after completion). It is important that we hear your voice and understand what you expect from the conference.
*** For those unsure or will attend via live streaming from all over the world, please also complete this survey. https://www.surveymonkey.com/r/Project8p
*** For 8p families, we suggest you request to join our closed private group on Facebook for current updates and ask questions about the event in this link: https://www.facebook.com/groups/project8presearch/
Agenda will be shared closer to the date of the conference.
Room Blocks are offered with two options. We recommend staying in NYC.
2130 Broadway at 75th Street
New York, New York 10023
-For reservations, call 212.787.1100 ext. 2, between 9:00 am and 6:00 pm EST Monday through Friday and mention the group name, “Project 8P” to receive the reduced rate.
Guests may also email, at firstname.lastname@example.org with Project 8P in the subject line.
-$265 per night +tax
-ADA rooms are available but limited (Only studio rooms available at $265 rate, suites are $315)
-60 day cancellation policy
-must book by April 29
-breakfast coupons available for Viand Cafe
-refrigerator in room
Homewood Suites by Hilton Edgewater, New Jersey
10 The Promenade
Edgewater, NJ 07012
Use the link for reservations or call 1-800-774-1500 and mention the Project 8P 2019 Room Block at this hotel. OR Go to Hilton.com or the app and type in the group code PRO.
-$199 per night +tax
-ADA rooms are available but limited
-refrigerator in room
-48 hour cancellation policy
-must book by June 13
** please note the hotel complimentary shuttle does not go to Manhattan. It can take up to 45min during rush hour to drive across the bridge. RUSH HOUR WILL EFFECT YOUR COMMUTE TO AND FROM COLUMBIA MEDICAL CENTER BOTH DAYS. Please plan on an extra hour or more each day to arrive on time for the conference.
Subway and Bus Trip Planner http://www.mta.info/nyct
NYC Wheelchair Accessible Information
For Yellow Taxis/Cabs, call 311 and request 4 passenger wheelchair accessible cab if needed.
If you are staying at Hotel Beacon in NYC, there is no parking on site however there is a garage across the street.
Carousel Parking Corp- Champion Parking
201 75th Street
If you are staying at Homewood Suites at Edgewater, there is free parking.
Columbia University Medical Center
*Valet parking at Milstein Hospital (~$30)
Call 212-304-1037 for information
*Self Parking at 115 Fort Washington Ave b/t 164th and 165th. (~$30). The garage is a 9min walk/0.4 mile. Call 212-305-4903 for information.
Sponsors we welcome you to request our media kit for you to get exposure at a rare disease conference and we thank you for supporting us.